Thursday, April 22, 2010

Pattern to the Pain

I have been tracking how things feel "down there" for the last several months in a journal and I am definately seeing a pattern regarding when I hurt and when I am okay. The most interesting part is that there it appears to be a pattern and it appears to be linked to my cycle.

Monday, April 12, 2010

Trying the Gym Out Again

So after not going to the gym since September because I have been trying to get the DIV under control, I decided today was the day to give it a try. I have been doing pretty well for the last month with my estrogen treatments and I am NOT liking how my spring clothes are fitting so I figured I need to try something. I wore my loosest pants and did about 20 minutes on the recumbant bike and 20 minutes on the elliptical machine. Then I flew home, showered and put on a nightgown so I would have no clothing pressure.

I definately am out of shape and kind of horrified that my bum and legs hurt after 20 minutes on the bike, but on the other hand I am proud of myself for biting the bullet and giving it a try. So far tonight I doing okay afterwards, so keep your fingers crossed I have not aggravated the DIV because I would like to try again on Thursday!

Tuesday, April 6, 2010

Dear Prudie Question

Article on Slate from last Thursday regarding someone with similar pain issues. Check it out at http://www.slate.com/id/2249388/

Someone else with the same problem

One of the most frustrating things about this is that I don't know anyone else with DIV. Saw another post today of someone with the same issue here http://universal-drugs.net/vulvar-disorders/has-anyone-been-diagnosed-with-desquamative-inflammatory-vaginitis-div-or-know-someone-that-has/

I feel really bad for her, but at least she has a diagnosis now so she can work towards a fix. That was the hardest part for me in the first several months is that no one knew what was wrong with me. I had never had anything wrong with me that wasn't easily identifiable or fixable so it was really scary. I had self diagnosed (gotta love google) with all kinds of horrible things. DIV isn't ideal as there is no cure or cause and only a hope for diagnosis, but at least I now have a name which is half the battle.